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    "result": {"pageContext":{"language":"en","pathURL":"aman-kumar-nitinbhai","isDefaultLanguage":true,"storyData":{"Name":"Aman Kumar Nitinbhai","Alt_Photos":null,"Alt_Text_Photo1":"Aman Kumar Nitinbhai (9) stands outdoors on an expanse of stubbly green grass. He has short, straight, black hair combed towards the forehead. He wears navy blue track pants, turquoise blue sandals with ash-grey straps, and a white half-sleeved shirt printed with large, black, random capital letters of the English alphabet and irregular-shaped, pastel-brown patches. He smiles as he raises both hands so they look like wings. His shoulders are shrugged and his right heel is raised while he stands on the toes of his left foot. It appears as if he has just thrown a ball because a soft ball made of plush is suspended mid-air in front of him. The ball has sections in a hexagonal honeycomb pattern, and the side facing the camera are coloured red, sky blue, and sapphire blue. In the far distance there is a whitewashed compound wall and green trees and shrubs.","Alt_Text_Photo2":"Mid shot of Aman wearing a dark cobalt blue, round-necked, full-sleeved cotton knit shirt. He sits in a scarlet computer-chair behind a table with a shiny top that reflects a dark sky blue shade. The wall behind him is light sky blue. A black slate is placed on the table in front of him. His right hand rests on the slate and he holds a white piece of chalk in his left hand.","Alt_Text_Photo3":"Aman, wearing a royal blue half-sleeved knitted shirt and navy blue track pants, stands holding parallel bars meant for physiotherapy. The bars are painted neon orange. The faded red surface he stands on is slightly inclined. He holds the top bars on either side with his hands. The equipment abuts a pale pink wall to the right. The rear wall is cream.","Alt_Text_Photo4":"Aman, wearing his navy track pants and white shirt printed with capital letters, stands at the mouth of a tunnel-shaped structure. The inside of the tunnel is white and the arched mouth of the tunnel is painted sky blue. The tunnel’s outer surface is maroon with a sky blue cartoon drawing of a steam engine train. On the light grey wall to the left of the tunnel there is a cartoon sketch of the rear of a boy in a maroon-and-white striped shirt and sapphire blue shorts with arms raised to touch his light grey hair. He is looking into a mirror above a white wash basin with smoky-grey edges. The mirror image of the boy is painted on a sky blue rectangular background. It shows a yellow hairbrush in the right hand and the left hand resting on top of the head. There is a long, cream bar of concrete lying horizontally at the base of the tunnel, forming the sill of the doorway. Aman is about to step out of the tunnel with his hands resting on either side of the opening and his left foot on the concrete bar.","Alt_Text_Photo5":"Aman sits on a bed in the middle of his father Nitin Kumar Ambalal Barot (35) to the left and mother Manishaben Nitin Kumar (35) to the right. All of them sit cross-legged. While Aman faces the camera, Nitin and Manisha face each other. Nitin wears a mushroom pink half-sleeved knitted shirt. His wavy black hair has a side parting. Aman wears a maroon T-shirt and navy blue track pants. Manisha wears a three-fourth-sleeved kameez in a shade of natural indigo dye, printed with a leafy floral design. The parents are smiling as they look towards the playthings in front of Aman. Four plastic rings are stacked in a descending order of size, forming a roughly conical shape. From the bottom upwards, the rings are red, orange, yellow and green. On top of the stack there is a small felt ball in a honeycomb pattern of red, blue, orange, yellow and white. Aman is looking down at the ball as he touches it with his left palm. The bedsheet has white motifs on a light orange background. There is a large window on the cream wall behind the bed. The two drawn curtains, of a filmy material, are printed in a design of seven stepladders, side by side, with a posy of flowers in each of the rectangles between the rungs. The design is in chocolate brown, light orange and white.","Alt_Text_Video":null,"Photo1_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Aman_Kumar_Nitinbhai/_O2A0435.jpg","Photo2_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Aman_Kumar_Nitinbhai/_O2A0276.jpg","Photo3_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Aman_Kumar_Nitinbhai/_O2A0423.jpg","Photo4_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Aman_Kumar_Nitinbhai/_O2A0457.jpg","Photo5_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Aman_Kumar_Nitinbhai/_O2A0360.jpg","Name_English":"Aman Kumar Nitinbhai","Language":"en","Disability":["reczub93eQfgX6P6y"],"Gender":"Male","Instagram_Content":"Knowing that your child has a disability can disturb most parents. Knowing he has two disabilities might crush them. Nine-year-old Aman Kumar Nitinbhai from Mahisagar in Gujarat was just two when hospitals confirmed he had the inherited blood disorder Thalassemia as well as Cerebral Palsy (CP). Nitin Kumar and Manishaben, both aged 35 now, narrated how, after their initial distress, they sought and found the right path towards their son’s well-being. \n\nThalassemia entails blood transfusions, while CP affects speech and movement. Manisha says Aman can only use his right hand, his gait is slow and unsteady, and he needs help getting up after sitting down. His speech is limited to a few bi-syllabic words. He goes to the Blind Welfare Council school in Dahod. Manisha completed the Council’s two-year diploma course in special education and has been patiently helping Aman learn the activities of daily living. His teachers Radhika Singh and Bharat Patel have helped him learn to manage simple tasks. He communicates only with signs or actions but he is undergoing speech therapy. Nitin, who is a driver at the school, says a doctor in Rajkot prescribed thalassemia medicines that, for the past three years, have effectively stopped the need for transfusions.\n\nLearning life skills is an important part of Aman’s school routine. At home he plays with his toys, rides his tricycle, and watches cartoon films on Nitin’s mobile. Besides dal and rice he is fond of buttermilk, pakoda, and Manchurian snacks, and has a weakness for lemon sharbat (lemonade). One hopes the unwavering encouragement of Aman’s family and teachers would guide him toward a more independent future.","Quote":"“I am getting speech therapy. I watch my favourite cartoons on my papa’s mobile”","Status":"Published","Video":null,"Website_Content":"Knowing that your child has a disability can disturb most parents. Knowing he has two disabilities might crush them. Nine-year-old Aman Kumar Nitinbhai from Mahisagar in Gujarat was just two when hospitals at Modasa and Vadodara confirmed he had the inherited blood disorder Thalassemia as well as Cerebral Palsy (CP).\n \nAt first his parents felt the heavens were falling, but then they realised they would themselves have to lift the dark cloud off their shoulders. Nitin Kumar and Manishaben, both aged 35 now, narrated how they sought and found the right path towards their son’s well-being, step by steady step. \n \nThalassemia entails blood transfusions, the frequency depending on the type and severity of the condition, while CP affects speech and movement. Manisha recounts that Aman started sitting up at three and walking at five. He can only use his right hand, his gait is slow and unsteady, and once he sits down he cannot get up by himself. His speech is limited to a few bi-syllabic words. Manisha says. “He can only say pa-pa and da-da; he cannot even say ma-ma.”\n \nIn Dahod they found the right environment at the Blind Welfare Council school, where Aman is enrolled. Manisha, who has an M.A. in Hindi, completed the Council’s two-year diploma course in special education. She has learnt to handle children with CP, Intellectual Disabilities, Blindness and Specific Learning Disabilities, and so she is able to play a central role in her son’s development, patiently helping him learn the activities of daily living. Through the combined efforts of his mother and his teachers Radhika Singh and Bharat Patel, Aman has gradually learned to manage simple tasks. He communicates only with signs or actions but he is undergoing speech therapy.  \n \nNitin Kumar is employed as a driver at the school and the family lives in a two-room house on the same premises. Nitin says a doctor in Rajkot prescribed thalassemia medicines that, for the past three years, have effectively stopped the need for transfusions, which comes as a huge relief. “All the teachers at his school are kind and supportive,” says Nitin. “Since he cannot communicate with strangers he has no friends. When our relatives and friends come home he recognises them, identifying them through his signs and expressions. Similarly he can identify domestic animals like dog, cow and goat.” \n \nEvery day Aman attends school from 9 a.m. to 4.30 p.m. He arranges building blocks and draws lines since he cannot write. Learning life skills is an important part of his routine. At home he revels in simple pleasures: playing with his toys, riding his tricycle, and going for a spin on his father’s bike. He loves watching cartoon films on Nitin’s mobile; once it is switched on and handed to him he knows how to select his favourite films on YouTube. He likes to exercise and, unlike most children who don’t care much for baths, enjoys taking a shower! He has a hearty appetite: besides dal and rice he is fond of buttermilk, pakoda, and Manchurian snacks, and has a weakness for lemon sharbat (lemonade).\n \nAman’s parents are naturally worried about his future, unsure how to obtain continuing, sustained support for his development. One hopes the unwavering encouragement of his family and teachers would guide him toward a more independent future.\n","State_name":"Gujarat","Display_Order":264}}},
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